ILD Patient Resources
Support Groups
Living With a Lung Disease Support Groups (American Lung Association)
Pulmonary Fibrosis Foundation Support Groups
Resources for Specific ILDs
Connective Tissue Disease-Associated ILD
(dermatomyositis, polymyositis, mixed connective tissue disease, granulomatosis with polyangiitis, Sjӧgren's syndrome, scleroderma, sarcoidosis, rheumatoid arthritis, Raynaud's syndrome)
American Autoimmune Related Diseases Association
Scleroderma Foundation
Familial Pulmonary Fibrosis
National Jewish Health
Christine Garcia, MD, PhD, Columbia University
Idiopathic Pulmonary Fibrosis (IPF)
Pulmonary Fibrosis Foundation
Lymphangioleiomyomatosis (LAM)
The LAM Foundation
Sarcoidosis
Foundation for Sarcoidosis Research
UCSF Sarcoidosis Research Program
Medication
Mayo Clinic Drugs and Supplements
MedlinePlus Drugs, Herbs and Supplements
Esbriet
Ofev
Conditions Associated with ILD
Gastroesophageal Reflux Disease (GERD)
International Foundation for Functional Gastrointestinal Disorders
MedlinePlus: GERD
Pulmonary Hypertension
Pulmonary Hypertension - High Blood Pressure in the Heart-to-Lung System
Pulmonary Hypertension Association
Sleep and Sleep Apnea
American Sleep Apnea Association
MedlinePlus: Sleep apnea
National Sleep Foundation
Smoking
Tobacco Free California
UCSF Stop Smoking Classes
ILD Symptoms and Complications
Anxiety and Depression
Freedom From Fear
UCSF Osher Center for Integrative Health
Deconditioning
California Society for Pulmonary Rehabilitation
Dyspnea (Shortness of Breath)
Pulmonary Education and Research Foundation
Better Breathers Club Program (American Lung Association)
Hypoxemia and Supplemental Oxygen
Emphysema Foundation for Our Right to Survive (focuses on COPD but provides useful information on oxygen equipment, traveling with oxygen, etc.)
Weight Loss or Gain
Aim for a Healthy Weight, National Heart, Lung, and Blood Institute
Weight Watchers
General Lung Health Information
American Lung Association
National Heart, Lung, and Blood Institute
National Library of Medicine
UpToDate.com
Caregiver Support
Resources for Financial Hardship
MedicaidNational Rehabilitation Information Center
NeedyMeds
Partnership for Prescription Assistance
Social Security Administration: Disability Benefits
Social Security Administration: Employment Support Programs
Research Studies and Getting Involved
ClinicalTrials.gov
Foundation for Sarcoidosis Research
Pulmonary Fibrosis Foundation
Rare Diseases Clinical Research Network
Scleroderma Foundation
The LAM Foundation
UCSF Interstitial Lung Disease Clinical Research
Lung Transplantation
American Society of Transplantation
UCSF Lung Transplant Program
United Network for Organ Sharing
Advance Care Planning
End of Life Resources, AARP
National Hospice and Palliative Care Organization
Tool Kit for Health Care Advance Planning, American Bar Association
UCSF Health medical specialists have reviewed this information. It is for educational purposes only and is not intended to replace the advice of your doctor or other health care provider. We encourage you to discuss any questions or concerns you may have with your provider.