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Interstitial Lung Disease (ILD) Program

The UCSF Interstitial Lung Disease (ILD) Program is dedicated to improving the lives of patients with interstitial lung disease, or ILD. We do this by focusing on patient care, education and research, and community building.

The program specializes in the comprehensive care of people with all types of ILD. We provide state-of-the-art diagnosis and treatment recommendations, working as a team to review each case thoroughly so as to optimize disease and symptom management. We communicate directly with patients and their referring doctors to assure continuity of care and appropriate follow-up.

As part of an academic medical center, we are committed to meeting the educational needs of our community. For patients and families, we hold seminars on ILD and offer a support group for anyone affected by this condition, called Living Well With ILD. For doctors and other health care providers, we offer continuing medical education sessions on interstitial lung disease as well as a quarterly newsletter.

Our locations

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    Living with interstitial lung disease

    Patient education

    FAQ: Cyclophosphamide

    Cyclophosphamide is part of a class of drugs called immunosuppressants that suppress the immune response and reduces inflammation in the lungs. Learn more.

    FAQ: Methotrexate

    Commonly asked questions regarding Methotrexate including, recommendation, precautions, possible side effects, suggested monitoring and more.

    FAQ: Mycophenolate

    Commonly asked questions regarding Mycophenolate including recommendation, precautions, possible side effects, suggested monitoring and more.

    FAQ: Prednisone

    Commonly asked questions regarding Prednisone including, the reason for recommendation, special precautions, possible side effects, monitoring, and more.

    GERD in ILD Patients

    Many studies have shown a link between GERD & lung disease, including interstitial lung disease (ILD). The reason for this relationship is unclear. Learn more.

    ILD Nutrition Manual

    Nutrition Manual for Interstitial Lung Disease including, General Guidelines for Eating Healthy, Body Mass Index, Increasing Protein in Your Diet and more.

    ILD Resources

    Patients living with interstitial lung disease (ILD) will find numerous resources listed here, offering information and support.

    Pulmonary Hypertension and Interstitial Lung Disease

    Pulmonary hypertension, or PH, occurs when blood pressure in the lungs becomes elevated, and can be caused by a thickening of the pulmonary artery walls.

    Pulmonary Rehabilitation for ILD Patients

    Pulmonary rehabilitation is a comprehensive program for lung disease patients whose symptoms are impacting their everyday activities. Learn more here.

    Supplemental Oxygen

    Find Supplemental Oxygen Resources including, The Need for Supplemental Oxygen, Your Oxygen Equipment, Oxygen Safety, Traveling With Oxygen, and more.

    Decorative Caduceus

    OCS™ Lung TOP Registry For Donor Lungs for Transplantation

    Primary Effectiveness Endpoint

    Recruiting

    Decorative Caduceus

    Use of CXCL9 as a Biomarker of Acthar Efficacy

    Recruiting

    Decorative Caduceus

    Study of Efficacy and Safety of Inhaled Treprostinil in Subjects With Idiopathic Pulmonary Fibr...

    The FVC measurement indicates the amount of air a person can forcefully and quickly exhale after taking a deep breath.

    Recruiting

    Decorative Caduceus

    Efficacy + Safety of Liposome Cyclosporine A to Treat Bronchiolitis Obliterans Post Single Lung...

    Recruiting

    Awards & recognition

    • usnews-neurology

      Among the top hospitals in the nation

    • usnews-pulmonology

      Best in Northern California for pulmonology & lung surgery

    • PFF-2x

      Designated pulmonary fibrosis care center

    • 450-2x

      new patients treated each year

    Support services

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    Patient Resource

    Case Management & Social Work

    Connect with a team that can help you find resources, solve problems and advocate for you during treatment at UCSF.

    Class

    Mindfulness-Based Stress Reduction Class

    This eight-week class teaches mindfulness practices that can reduce stress and improve your overall health, such as meditation and body awareness.

    Patient Resource

    Patient Relations

    We welcome feedback about your experience at UCSF Health. Find out how to contact us with comments, questions or concerns.

    Support Group

    Pulmonary Support Groups

    Find support groups for people with pulmonary conditions such as obstructive sleep apnea, interstitial lung disease (ILD) and pulmonary hypertension.

    Patient Resource

    Spiritual Care Services

    Chaplains representing many faiths are available around the clock to provide support, comfort and counsel to patients, families and caregivers.

    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your condition
    • List of your medications, including dosages, plus any you're allergic to
    • List of questions you may have
    • Device or paper for taking notes

    International Services

    If you live outside the United States and are coming to UCSF for medical treatment, our patient liaisons can help coordinate all aspects of your visit.

    Learn more

    Interpreting Services

    UCSF offers interpreters in various languages, including American Sign Language (ASL), as well as services for deaf, hard-of-hearing and visually impaired patients.

    Learn more

    Hospital Stays

    Make your hospital stay as smooth and comfortable as possible by finding out how to prepare and what to expect.

    Learn more

    Your Doctor Visit

    See our top 10 tips for making your UCSF doctor’s appointment as stress-free and productive as possible.

    Learn more

    Related clinics

    Lung Transplant Program

    400 Parnassus Ave., Sixth Floor
    San Francisco, CA 94143

    Our research initiatives

    • Interstitial-Lung-Disease-Research-2x

      Interstitial Lung Disease Research

      UCSF's interstitial lung disease researchers investigate how lung tissue scarring develops and progresses, and evaluate potential new treatments.

    Can't find what you're looking for?

    UCSF Help Center

    (888) 689-8273

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